How has Infertility Changed You? Listen Up! #NIAW

listen up

I was asked this question yesterday…

How has infertility changed you and how you live your life?

It stopped me in my tracks. It takes a brave person to ask that question and I think an even braver person to answer it. So, Listen up!

I thought the words would flow from me like a waterfall of knowledge on the topic of infertility and trying to conceive. I feel like an expert with years of experience and I’m practically a walking science experiment for how to make a baby. But instead of words, my heart jumped to the answer before my head could and I responded with tears. Infertility and the winding journey of trying to find my way to baby has been a life altering experience. It has changed me at my core. I view the creation of a baby as a miracle that always feels out of reach. I’ve been teased by this gift of life in my own belly only to have it stripped away from me. Three times. Infertility is not just about finding alternative ways to conceive or finding alternative paths to parenthood. It is a test of will, a test of relationships, a test of stamina and a test of faith. Infertility will school you on courage, bravery and resilience. Infertility strips you of financial freedom, emotional stability, physical strength, and the ability to freely enjoy the sight, sounds and touch of a baby that is not your own. Infertility creates anxiety, exhaustion, anger, blame, grief, fear and trauma. It stops you from attending baby showers, shopping for onesies for a friend, walking through the baby section of department store, or commenting on a pregnancy announcement on social media. And, infertility asks a lot of nagging, annoying, irritating, painful questions…

Do you mind carrying a high credit card debt? How many credit cards do you have? We’ll have to max those out.
Do you have any savings? I’ll need that too.
Would you like to take out a loan?
You don’t really need to drink wine do you?
Can you give up caffeine, just for me?
What do you think of these stirrups? They look comfy right?
Do you want to do IUI or skip it and go straight to IVF?
Do you have good veins? I’m going to need access to those. Think of me as your favorite vampire. It’s going to be that kind of relationship.
What do you think of needles? Do they scare you? You’re gonna have to get over that.
Can I put this ultrasound wand in your vagina? Can I do that another 100 times?
Do you mind adding biohazard containers to your master bedroom décor?
Isn’t pineapple core delicious?
I know you love to drown your sorrows in comfort food, but would you mind giving up gluten?
Would you please lose some weight?
Are you working out?
Would you like to see an ultrasound of your ovaries and uterine lining? I can’t find your left ovary. Where is your left ovary?
Oh, you are looking for a sperm donor and egg donor? What color hair, eyes, height, weight, education, hobbies, religious background and medical history do you want? I’m going to have to ask you about another 50 characteristics so please think this through.
Are you relaxed? You need to relax.
Do you want to meet the egg donor?
Have you considered adoption?
Would you like to work with a surrogate?
Have you met with your doctor, your cycle coordinator, your nurse, your therapist, your acupuncturist, your naturopath, your personal trainer, and your dietician?
Do you do yoga? C’mon, show me some downward dog.
Do you meditate? I think you should meditate.
Do you have a support group? You’re gonna need that too.
What was the date of your last period?
Do you have normal cycles? How many days are your cycles?
How much do you weigh? Have you gained weight recently?
Do you feel like giving up?
Do you hate me? It feels like you hate me.
Do you still love your husband?
Do you still want to have a baby?
Are you sure you want to have a baby? Cause this is just going to keep getting harder.
How many boxes of home pregnancy tests do you have in your bathroom cupboard?
Do you see a second line? I think I see a faint second line. Nope, just kidding, that was just a line of false hope.
Will you give up sugar for me? Pretty please?
Are you still having sex with your husband? How’s your sex life?
I know you just had a miscarriage but do you think you’ll try again? When will that be? The clocks ticking ya know.
OMG, is it your birthday? Are you getting too old for this?
You look bloated, are you bloated? Seriously, you look 4 months pregnant.
This is when you realize infertility can be a total asshole.

But there’s still more…Infertility has made me fear my own birthday, dread another Christmas, made me heartbroken over the photo of a child and an Easter bunny, and has left me lost in tears and depression on Mother’s Day. I have changed my career plans, given up on extravagant vacations, spent thousands of dollars on IVF, donor egg IVF, medications and embryo transfers, and have feared the loss of my marriage. I have said “No” to friends and family so many times because I didn’t have the energy for a fun activity on top of all of my doctor appointments, side effects from hormone injections or emotional exhaustion from another failed cycle or from a miscarriage. I have faced a grief so deep and so intense, I thought it would swallow me whole and never give me back my light. I have hung by my fingertips on the edge of the giving up cliff so many times and have nearly slipped away…but I have learned this…Someone always reaches down for my hands and pulls me back up.

And somehow, hope keeps me standing and love keeps me walking toward my dream. If you keep your eyes open and your heart beating, the journey through infertility happens to be filled with as many gifts as there are pitfalls.

Infertility has convinced me take care of my body and my mind. Infertility has persuaded me to live in the moment. Infertility has taught me to love more deeply, to be vulnerable, and to share my story without fear. Infertility has enabled me to enjoy the small, happy, fleeting moments. Infertility has given me the ability to see beauty everywhere I turn. Infertility has shown me how to have a much deeper compassion for others. Infertility has brought me the most amazing, supportive, loving friendships. Infertility lead me to pregnancy three times and while this left me with a total of five angel babies, it has given me a love so profound that in every challenge and every painful moment, I have this beautiful love that lives within my soul. Infertility has been my teacher to live a full life, to appreciate everything that I have and to never take the miracle of pregnancy for granted. Infertility has changed my life, but made me realize it is not my life. Infertility has altered me, but it has not taken me. Because of infertility, I am beautiful, I am resilient, I am more loving, I am courageous and I am more Me.

Strength

blog entry4 photo

The photo posted with this entry was written to me by my husband. He quickly replaced what had been written before we got the sad news about losing our second pregnancy. Before he wrote this, we had started a list of names for the twins and had some favorites listed. It’s just too easy to start dreaming about the day we would hold them in our arms and give them these cute names. Both my husband and my best friend recently told me these words…”you are the strongest woman I have ever known.” It’s quite amazing to hear those words when strength feels like it’s gone into hiding and crouched in a hole covered by confusion, loss and heartbreak. Thinking about my own strength, hiding in there somewhere, I am reminded of a story I read in another blog a few months ago. It was around the time I was going to start another embryo transfer cycle that I ran across this touching story about a woman who lost her sweet baby girl. To me, it was the most beautiful story of a mother’s love and quiet courage. In reading her story, I could feel every word so deeply and relate to her experience so strongly. While she experienced a much more difficult journey than I had faced with my first loss, the feelings in those very raw moments are so intensely the same. Her words brought amazing beauty to her daughter’s brief life and touched so many of us who needed a way to understand our own pain. And I could make more sense of my own loss through her words. She gave us all a gift by writing her story. Her name is Danielle Walker and I have never met her. She is the author of several recipe books that I really enjoy and I follow her on Facebook. What I found so incredible about her is her amazing spirit that shines through in her writing and how she endures through this loss by truly living. I see her posting updates on Facebook about her book tours with a smile on her face and interacting with so many people. But also at times, admitting to her followers that she misses her baby. And she just amazes me. To me, she is STRENGTH. And she just might be able to help me find mine. I’ve attached a link to her story about her baby, Aila.  http://againstallgrain.com/2014/07/24/life-after-aila/

Photo by CJE