Changing topics today…. Mental Health: It Takes one Person to Change a Mind

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While I’ve continued to recover from a back injury and put TTC on hold, I’ve been able to focus a bit more attention on another topic that is very meaningful to my family and me. My sister writes a blog, “Out of A Great Need” which shares her compassionate journey as a care taker for a loved one living with a mental illness. While this journey can be filled with so much despair, fear and darkness, my sister’s approach is full of light, hope, education, advocacy, breaking down stigma, support, art, creativity, devotion, mindfulness, love and a “never give up” attitude.   Instead of succumbing to negativity or lack of knowledge that has crossed her path, or our society’s slowly evolving view of mental illness, she routinely rises above and educates others to have a greater understanding of these diseases of the brain.

With Halloween approaching, she recently became aware of several costumes on many, many Halloween and costume websites that sell the following:

Children’s Gone Mental Costume (Some websites have changed the name due to feedback, Spirit Halloween has removed it from inventory due to feedback!)

Adult’s Cell Block Psycho Costume

This is an example of how far behind we are as a society to break down the stigma of mental illness. These costumes make light of a disease. These costumes hurt and discourage those suffering and those who care for them.

Today, she wrote a heartfelt post titled, “Why…Why this?” about why she’s talking to all of these companies to remove these costumes from inventory.  I encourage you to read her post here and below is a quote from today’s post:

When I stumbled across the Gone Mental children’s costume, I was deeply saddened.  This costume (and adult costumes like it) dishonors the dedication of those who provide professional care for our loved ones, it dishonors our families, our friends, it dishonors our children’s suffering and recovery.  It dishonors our children’s lives lost along the way.  It encourages fear, isolation and hopelessness.  It discourages our children from seeking the help they so deserve.

My sister started an effort with these Halloween costumes to make a difference and to break down stigma. She started an effort to fight for those suffering and to honor those lost along the way. And it’s working. Spirit Halloween removed the Gone Mental costume from inventory. I’ve joined in this effort by writing letters to all the companies she has listed in her blog posts and writing on each company’s Facebook pages. I’ve also posted reviews of these costumes directly on some of their websites.  Many mental health advocacy groups have joined her. Other bloggers have joined her. Friends and family have joined her. The author of the book, “The Noonday Demon”, Andrew Solomon is showing his support of her efforts through Facebook and has shared her recent blog post.

She is working hard to educate others to bring awareness to these illnesses and I was touched by her words on another recent blog post, titled, “And Now you Know“:

The more we speak from our hearts…in letters…emails…product reviews…the more we share our truth…the less likely we’ll have to tackle issues such as these mental patient costumes in the future.

Contacting these companies is simply a key to unlocking that “something greater”…not just for ourselves…but for generations to come.

Hopefully, by speaking from our hearts, people will start to listen.  When they shop for Halloween costumes, they might pause…remember…and choose another costume that does not cause such suffering.

And maybe…just maybe…they will also remember our voices when they hear a cruel joke or witness alienation or bullying and say, “That’s enough.  We know better now.”

If this topic peaks your interest, I ask for your continued awareness on this topic. Halloween costumes are one piece of negative stigma toward mental illness. Be aware of these costumes, be aware of people making comments that show lack of understanding or compassion towards those suffering. Be compassionate towards those suffering. If you are struggling, please don’t be afraid to ask for help.

For more information on my sister’s efforts, you can visit this blog post,

https://outofagreatneed.wordpress.com/2015/09/13/stay-the-course/

Photo by CJE

I’m waiting for my Yang

yin yang image

Less then a week leading up to my planned embryo transfer (last Saturday), I somehow managed to injure myself. Our house has been a chaotic mess for the past two months due to a kitchen renovation and I went on a mad cleaning spree. Apparently I bent over a few too many times as I felt a strong muscular ache start to build and spread from my lower back through my hamstring. But no biggy, I just worked hard. It’s just sore muscles. Just as I was about to sit down and relax after a day of cleaning, our dog started acting strange. She was frantically pacing and panting and drooling through the house. I rushed her to the vet right as they were closing up for the day. Nothing life threatening and her symptoms were inconclusive so we were sent home. Within a half hour after getting home she started vomiting. Repeatedly. Again, I was bending over, helping her and trying to take care of her. After two and a half hours of this, we rushed ourselves into stop and go Saturday night beach traffic and made our way to the emergency vet hospital with her gagging in the back seat for 45 minutes (our poor baby). We spent 3 hours there trying to figure out what was wrong and to treat her. Thankfully after their care for her, she started to improve and over the next couple of days she was on the road to recovery. But it turns out that all that repeated lower back strain I put myself through was reacting (unbeknownst to me) with a clamp down on a nerve like the strength of a zombie biting into it’s first victim. I woke up at 1am Monday morning in torturous pain running down my left leg. All the muscles in my glute and hamstring were as tight as steel rods and on fire. I’ve never had such horrible cramping and muscle pain in my life.   I had no idea what I was in for, but it turned out this pain did not let up and in fact got worse spreading through my calf and foot the next day. I could barely move. It was too painful for a long ride to a doctor’s office so my first thought was massage. It would just be a ten minute drive to a massage versus 30-40 minutes to the doctor. I had to drive myself as my husband had to go to work and I cried in pain all the way there. The massage provided a lot of relief for the 90 minutes I was there, but it quickly returned and I cried in agony all the way home. After a couple of days, I was able to get to my chiropractor (also near by) where he was rather concerned it was a pinched nerve (as half my left foot was numb and I did not have much control of my foot). As the week progressed, I got up the bravery and desperation to take the longer car rides to acupuncture and doctor appointments. This required some creativity with the husband and friends to coordinate with me since I couldn’t drive. But thanks to all of them, I eventually made it to the acupuncturist and the doctor. Every day, I kept thinking, this has got to get better, I have my embryo transfer on Friday! But I knew in my heart that my body was under too much stress and too much pain and on Thursday I talked to my doctor and we decided to cancel. I was so discouraged, disappointed and depressed. Of course, this cycle can be repeated but there had been so much work leading up to this point and now it was gone again. The injections, the workouts, the 3 day cleanse I did to make me feel healthier, the blood tests, the ultrasounds, the timed acupuncture appointments with my cycle…the list goes on and on. Plus the fact that this was my first cycle after taking a much needed break for several months. And now, just a big, fat, UGH. The embryos and I will have to wait for a later date.

I went to my acupuncturist for help with the pain and told her I had to cancel the embryo transfer. She said she was so sorry for my bad luck but not to worry. With bad luck, comes good luck. The Yin and the Yang have to balance out. My good luck would be coming.

After 4 days of absolute hell, I was finally in a doctor’s office. It was looking like sciatica and hopefully not as severe as a herniated disc. That night I started on a couple of different medications and the pain started to let up and I was finally able to sleep for the first night in 4 days. By Monday I was able to drive but still in discomfort. I spent this week, working a few hours in the office and a few hours at home each day. Unfortunately the medication I’m on during the day has been making me feel very sick and I’m struggling through every day in a Prednisone-induced stupor full of nausea, hot flashes, dizziness and overall uckyness and ickyness. Next week I’ll start physical therapy and my continued plight to find harmony between my Yin and my Yang.   There is no shadow without light. I want my Yang back and I want it in the form of a baby.

Cervix Denies Entry But Plan Continues

IMG_5254My July cycle to do the endometrial biopsy and ERA (Endometrial Receptivity Array) did not go as planned. My doctor had me go through the same controlled cycle that we would do for an embryo transfer but instead of transfer day, we would do this procedure. The hope was that 1) the endometrial biopsy would make the uterine lining “sticky” for the following cycle’s embryo transfer and 2) the ERA would let us know if we were transferring the embryo on the right day of the cycle for optimal endometrial receptivity. Sounded like a fabulous plan to me. There is no solid evidence that the endometrial biopsy directly increases chance of pregnancy, but I was willing to do it in hopes that it could make a difference for me.

The endometrial biopsy is not a fun procedure and I had done it once before and it did lead to my second pregnancy. The first time doing this procedure was without any pain medication and wow, that was a mistake. I remember getting ready for the procedure and the doctor asking me so calmly if anyone had warned me ahead of time of the pain level. Um, no, I was expecting it to be something like a pap smear. He proceeded to tell me it’s about a 7 out of 10 on the pain scale. Holy crap. Yep, he was right. Luckily it’s not a long procedure but I did not want to go through that again. For this second time around I was very apprehensive about the pain, so my doctor was able to do a paracervical block (lidocaine injection) and I could tell it was helping a lot. However, after what seemed like forever, staring at the ceiling, scared to move, and at least 4 tries by the doctor, he could not get through my cervix. It was such an unnerving experience and very frustrating for both of us. It turned out that my cervix had developed nabothian cysts. Luckily they are benign and not harmful, but due to the cysts, it was not possible to pass the instrument through the cervix. As I was lying there in tears, clutching the hand of the nurse and quickly becoming her new best friend, I could tell it was not easy on my doctor either. So we called it a day and decided to think things through for a few days. That procedure was now out the window and I’d have to consider starting over again.

In the follow up conversation with my doctor barely a week later, I was in the precise condition to start another controlled cycle. After a thoughtful discussion, we all decided to move forward with the embryo transfer cycle and skip the other procedure all together. We are now two weeks into this process and the frozen embryo transfer will happen in one more week on August 21. Due to the cervix denying entry just a couple of weeks ago, we decided to do a mock embryo transfer and this happened yesterday. He was able to see that some of the cysts had gotten smaller, but also mapped out the path through my cervix on the ultrasound. It’s like a labyrinth in there! It is not a direct shot. There is a hard sharp turn on the way in. Luckily, the mock transfer went without a hitch and was very quick, so that boosted all of our confidence for next week. We are quickly approaching attempt number 8 and I’m trying my best to be healthy, stay rested, get in plenty of acupuncture and ready to accept positive energy, prayers, and happy thoughts from anyone who will give them.

Photo by – CJE, Catalina Island

Angel Baby Keepsake

IMG_7003Having gone through the heartbreaking experience of two miscarriages (15 weeks and 9 weeks), I wanted to create something for other women experiencing this type of grief and loss.  The words “Miscarriage” and  “Pregnancy Loss” do not equate to the trauma experienced.   At any stage of pregnancy, we have already become parents.  We have fallen deeply in love with our unborn child.  We have experienced hopes and dreams and ideas about what this baby will be like, how our lives will change, and the future we see for ourselves as a family.  It is a loss that stings so deeply and it is a grief that some may never find peace with.  It is a loss that many people do not talk about, but so many experience.

IMG_7009While first trimester miscarriage is common, there are those that have lost their baby during the second trimester.  There are those trying to pull their lives back together after a stillbirth.  I simply can’t imagine a pain so deep that would accompany these tragic losses.  But those going through this heartache need love, support and acknowledgement of their grief and their baby who’s life was so terribly short.

IMG_7013But what do you say to someone who has experienced the loss of their pregnancy?  The loss of their baby?  For those of us who have had this experience, we are left with a loss that has nothing tangible to hold on to.  We rely on the memory of the feeling of pregnancy and the bond and love that so quickly developed.  There may be ultrasound images that we can save but are now so hard to look at.  If you have not been through this type of loss, you may not know what to say or how to help.  But here are some do’s and don’ts that I have found helpful and that I hear repeated in the community of women that have experienced miscarriage:

  • Please acknowledge our loss.  Don’t pretend like it didn’t happen.
  • We are grieving deeply.  There is no quick recovery.
  • If I’ve named my baby, it feels good to me to hear his name.  To recognize that his life was real, that he is my son, and that I became a mother.
  • It’s ok to acknowledge our loss on Mother’s Day or Father’s Day to let us know you are thinking of us and know that we are heartbroken that our baby is not here.
  • Know that important dates are traumatic:  the planned due date, the anniversary of the loss, the date we found out we were pregnant.
  • Be aware that for those dealing with infertility and experiencing the miracle of pregnancy through medical intervention, the loss is terrifying.  We are not sure if we can ever get pregnant again.
  • Don’t say things like, “It was God’s Will”, or “It was not meant to be”.
  • Do not assume there must have been something wrong with the baby.  (All three of my angel babies were genetically normal).
  • Do not insinuate that the mother and/or father did something wrong or that it was their fault.
  • Recognize that the person grieving may not be able to attend baby showers, or visit a friend or family member who recently had a baby.  Give space without pressure or expectations in these situations.

IMG_7019In order to help those witnessing a loved one who is experiencing grief after the loss of their baby, I’ve created a gift that can be given to the woman or the parents of the unborn child.  If you do not know what to say, this gift will provide the acknowledgement of the loss while also providing something for them to hold on to.  I have created a hand made Angel Baby Keepsake gift box and card.

IMG_7021The outside of the gift box includes an ivory satin ribbon and silver angel charm.  Inside the box, is a card decorated to hold their baby in memory and love.  Included is a poem and pewter heart.  The box can be further customized by the parents to add items such as an ultrasound image or to write notes to the baby or to add little items in memory of him or her.

To order:  Visit my Etsy shop

Card Chic by CJ

Thank You Miss. Conception Coach and the Fertility Conference Bloggers!

missconccoach poster

The “Miss.Conception Coach Fertility Conference” came to an end after 14 days of heartfelt posts and I wanted to say a warm THANK YOU to Miss. Conception Coach and to all the bloggers that participated and to all of you out there reading, liking and responding to the posts!  I really enjoyed being a part of this online conference and making new connections with those of you going through similar struggles.

If you have not yet connected through www.missconceptioncoach.com I highly recommend it!  Through her website you can submit a request for the private Facebook page where you can safely and privately share your story and ask questions about all things infertility, miscarriage, hope, and loss.  It is a place to be supported by others on your bad days and to be a support for others on your good days.

As a recap, here’s a list of all the participant bloggers, in case any of you would like to follow any of these blogs.

Elena, Baby Ridley Bump Blog

Chelsea, Starbucks, Peace and the Pursuit of a Baby

Laura, Making Baby Provence

Halie, Then I Look Up at the Sky

Whitney, Running with PCOS

Jessi, Life Abundant

Caroline, In Due Time

Logan, With Great Expectation

Lindsey, Awaiting Autumn

Lindsey, Energizer 25

Ryanne, Girl Ryanne

Sarah, Ramblings of a Barren Heart

Ally, Uncomfortably Optimistic

The Gift of Friendship

i love you

Sharing our feelings and our personal journey through words can be rewarding and healing and can bring us a sense of peace. But it can also be intimidating as we are not always sure how our words will be received. I would like to thank my wonderful girlfriends and close family members for the positive and supportive response to my blog post, “The DNA Decision” that was featured during the Miss. Conception Coach Fertility Conference. Thank you Miss Conception Coach for helping me share my story! And thank you to all who follow my blog that offer support by silently reading my story, commenting or liking my posts.

I received some very kind messages from my closest friends after they read “The DNA Decision” and I wanted a place to save them and remember them, so I’ve gathered them here.

Thank you for warming my heart!

“I’m so proud of you Chrissy!”

“I read your post and I am simply amazed.   Your perspective, attitude and willingness to adjust are admirable.   I can’t wait to read more and share your blog with a few friends here who could learn a profound amount from your insight. Love you sister and I wish you success in your journey.”

“You are an inspiration Chrissy! So proud of you!”

“I’ll always be proud of you too, Chrissy. Thank you for always being willing to be so transparent, selfless, strong and an example to so many. Love you dearly xox you deserve so much, I’ll be praying every day for your continued journey.”

“You blog is truly inspiring. You never stop amazing me. You are an example to so many and I hope your courage and willingness to allow other avenues to be open for you brings light to others. I love you my friend and wish you success on your journey.”

“Thank you for sharing this with me, it is heartfelt and I am so proud of you for sharing your journey so others can be impacted. Hugs and love to you, xoxo”

“Chrissy you are an amazingly courageous wonderful human being!!”

This was written to my Mom and passed along to me:

“Wow, how wonderful the writing it is!! As you said she transmitted her deep emotional feelings in a very articulate way. I’m deeply touched by her beautiful writing. I wish Chrissy a lovely baby soon.”

An unexpected gift and blessing from South Korea, Waujeongsa Temple:

“The Day of Buddha’s coming fell on May 25th in the solar calendar.  I visited the temple a few days ago.  Notes with individuals’ wishes will be hung on the very day of Buddha’s coming.  I asked for an excuse to a monk and got the note beforehand.  So a few days ago, only your wishes were hung in the temple.  I like this better. I am sure that Buddha will show more mercy to you and your family.”

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I love you – Photo by CJE – Tunis, Tunisia

Lantern photo – from friend in South Korea

Miss.Conception Coach Fertility Conference Day 14 – Guest Post, Meet Ally!

ally

Check out Day 14 (the Final Day) of the Miss.Conception Coach Bloggers Fertility Conference! I am one of the participants in this conference (see Day 6) and I am very excited to get to share a part of my story through such a supportive forum. I hope you will be inspired to follow along as I’m sure you will feel a connection to the stories being shared. This is a journey we do not have to face alone. Check out today’s post by Ally at Uncomfortably Optimistic:

Miss.Conception Coach Fertility Conference Day 14

For more information about “Miss.Conception Coach” and this inspiring online community, please visit:

www.missconceptioncoach.com

The long, long wait

Africa October 2007 (3034)

I was first married at the age of 31. I married my high school “sweetheart” after we had been together for about 15 years or so. I remember in those early days of marriage and through most of our married relationship, we’d get a lot of questions about when we would have kids. Sometimes questions were direct, and sometimes they were subtle hints. Sometimes it was not subtle at all. I remember a family camping trip where the in-laws snuck into our tent leaving behind baby shower signs. I thought it was kind of cute and funny at the time, not knowing I would still be childless so many years later. In the beginning, these questions didn’t really bother me. It was definitely on my mind, but following high school, we had both been very driven with our college education and our careers. Once we were ready for marriage, there were travel plans to fulfill before babies. I wasn’t quite yet ready for kids, but I also knew that time was ticking and I didn’t want to end up regretting it later because I had “missed my chance.”   In that dual income, no kids relationship, we were fortunate to travel to South Africa, Zambia, Kenya, Tanzania, New Zealand, Amsterdam, France and Greece. It was truly incredible. I’m thankful for those opportunities and the memories of seeing lions, elephants, zebras and monkeys in the wild, glaciers in New Zealand, and sunsets in Santorini. When I turned 34, the clock was ticking loudly and I thought we better not waste any more time. But here’s where infertility hit without actually being an “infertile couple”. It just takes one person in the relationship to decide that kids were no longer in our future and bam…you can no longer make a baby. And that’s what happened. And during this time, I had my first experiences avoiding the comments…

”When are you going to have a baby?”

“You better not wait too long or you’ll miss your chance”

These questions and comments tore through my heart. I was now facing a decision of staying married with no kids or divorcing with the hope of still having them in the future. It was then, that I started realizing how hurtful these questions can be. I hadn’t even touched the surface of infertility at this point in my life, but this is when I realized, even hinting at parenthood could be a painful topic. I myself had been guilty of asking others these questions without any idea that it could be such a difficult topic.

I went through my 20’s avoiding pregnancy, and there I was in my early 30’s wanting a baby.   But now the person I had married was taking away an irreplaceable dream.   My high school sweetheart turned out not to be so sweet. This was the first time in my life I had to go through the grieving process of not being able to have a baby. By the age of 36, I was going through a divorce. I had no idea if I would marry again, have a baby, or if I would even have issues trying to get pregnant.   I remember thinking, “how could I possibly meet someone, fall in love, get engaged, get married and have a baby while I still actually have good eggs? Who knows how long this could take?”

A year and half went by between my separation, finalized divorce and magical eHarmony wink. And there he was. We went on one date and fell in love. So, that accelerated my imaginary timeline to baby quite a bit. Five months later we were engaged and a year and a half after meeting, we were married.   I was 38 when we got married. Let the baby making commence! Well…not so fast. We determined at the beginning of our relationship that we were one of those 1 in 8 couples. Three months after we were married we had our first round of IVF. In early January of 2013 I found out I was pregnant. Two days before my 39th birthday, I miscarried at 15 weeks. From there our story continued with a second miscarriage of twin girls and now I am moving toward our 8th embryo transfer at the age of 41. I’ve been married twice, yet I’ve never had the chance to try to conceive naturally.

I’m 41 years old and still trying to have a baby. But trying to conceive at 41, brings a lot of blessings in addition to the heartache. At 41, nobody asks anymore, “when are you going to have kids?” Nobody is on our case about having a baby.   Nobody says, “you better hurry up”. Baby showers become a rarity, since all of our friends already had one or two kids years ago. By the time 39 slipped away from me, baby making peer pressure that had previously existed, simply faded away.

Where that’s helpful when faced with infertility, it’s also scary because you start to realize that perhaps there’s no longer a reason for anyone to ask those questions. I worry that people may think we are crazy to try to have a baby so late in life.  Or may not even believe it is possible. While I see other women in their 20’s and 30’s going through the challenges and emotional pain of infertility, I realize in some ways I’m really lucky. When I was in my late 20’s and throughout my 30’s, all of my friends were having babies. But all this was happening at a time when I wasn’t faced with infertility and the pain associated with that journey. I went to a lot of baby showers and played a lot of baby shower games. I bought a lot of baby gifts. I could enjoy walking into a Baby Gap and buying some cute little outfits. I was able to be there with my friends not just for baby #1, but also for baby #2. And I loved all of it. I was able to be emotionally there for them and to watch their joy and feel their joy with them. I was able to be a friend and really care deeply about their move into mommyhood and was able to fall in love with all of their children. I have nieces and nephews that I love dearly, but I’m also an “Auntie” in several other households. I’m known as Aunt Cookie, Crispy, Auntie Chrissykins and Auntie Nasty. My husband even acquired the nickname, Uncle Cupcake this summer. I’ve been able to watch these kids grow up without the cloud of jealousy due to infertility. I didn’t have to back away from being a part of those growing families because I had just had a miscarriage or another failed embryo transfer. Those things didn’t start to happen until after my friends had their babies and for that, I am grateful.

I’m thankful that even though I’m doing this so late, those same friends are there to support me in my struggle. They are there to offer me words of encouragement when I can’t take the emotional pain anymore. They are understanding and allow me to follow my own path. They are compassionate. At this point in life, my good friends have had the life experiences to know what words to say or how to offer sympathy and kindness.  They have the strength to feel my grief with me.

While I never expected to wait so long to have kids of my own, I have had a journey that has changed my life. It has taught me how to survive deep emotional pain and grief and allowed me to support others in their journey as well. Through all the heartache, it has taught me that hope and faith still do exist. I haven’t given up yet. I’m still waiting for my baby…but oh, does it feel like the longest wait ever.

Photo by CJE – Serengeti National Park, Tanzania

Miss.Conception Coach Fertility Conference Day 13 – Guest Post, Meet Sarah!

sarah

Check out Day 13 of the Miss.Conception Coach Bloggers Fertility Conference! I am one of the participants in this conference (see Day 6) and I am very excited to get to share a part of my story through such a supportive forum. I hope you will be inspired to follow along as I’m sure you will feel a connection to the stories being shared. This is a journey we do not have to face alone. Check out today’s post by Sarah at Ramblings of a Barren Heart:

Miss.Conception Coach Fertility Conference Day 13

For more information about “Miss.Conception Coach” and this inspiring online community, please visit:

www.missconceptioncoach.com

Miss.Conception Coach Fertility Conference Day 12 – Guest Post, Meet Ryanne!

ryanne

Check out Day 12 of the Miss.Conception Coach Bloggers Fertility Conference! I am one of the participants in this conference (see Day 6) and I am very excited to get to share a part of my story through such a supportive forum. I hope you will be inspired to follow along as I’m sure you will feel a connection to the stories being shared. This is a journey we do not have to face alone. Check out today’s post by Ryanne at Girl Ryanne:

Miss.Conception Coach Fertility Conference Day 12

For more information about “Miss.Conception Coach” and this inspiring online community, please visit:

www.missconceptioncoach.com