Again

pink and blue charms031815I really thought it worked this time. I actually felt pregnant. I didn’t think my mind was playing tricks on me as I’ve noticed the difference between the embryo transfer cycles where I’ve had a positive result or a negative result. Four days post embryo transfer I felt a sharp cramp or twinge in my uterus and had my fingers crossed it was due to implantation. I know I felt it again too within those 9 days of waiting. My breasts felt like they do when I’m pregnant as opposed to just symptomatic of the progesterone injections. By day seven, I actually started feeling morning sickness on and off.   I got my hopes up and thought this time I had a really good chance. I’m always afraid to tell my husband how I’m physically feeling, as I know my mind can play tricks on me and I don’t want to lead him in the wrong direction as to the possible outcome. Especially in this case, as I was worried I would get his hopes up and be wrong. And that’s what happened. Within two hours of getting my blood drawn, our dreams were once again crushed as we read the result of <1. Every time this happens, my immediate response is complete despair, and the fear that this may never happen for us.   I feel so angry about the cruelty of it all. A few days from now on March 23, will be the two year anniversary of losing our first baby Jaxon. Oh, how I had wished we could face that anniversary pregnant again, feeling his soul supporting us along the way. But right now it just feels like loss piled on top of loss.

While we were at the hospital today waiting for the test results, there was a mobile jewelry and accessories store by the cafeteria. I found these little necklace charms pictured here. I bought one in blue and two in pink in memory of our babies’ heartbeats that were with us so briefly.

Photo by CJE

Chance #4/31: Mastering the Full Bladder Ultrasound

glass of water photoNow that I’ve been through seven embryo transfers (today was lucky number 7; fourth one from the egg donor embryos) as well as a handful of ultrasounds during early pregnancy, I’ve learned some things about preparing myself for a procedure that requires a “full bladder.” I say full bladder in quotes because I’ve learned it does not have to be painfully full in order to enable better ultrasound viewing of the uterus.

Water consumption: First of all, when told to drink 16 ounces of water an hour before an appointment, I don’t do it. (By the way, I’m not offering real medical advice. This is advice on how not to pee your pants on the way to the doctor or God forbid, pee on the doctor.) Female bladders are small and I could show up to a doctor appointment without drinking any water following a marathon and still have to pee.

Timing is everything: Appointments in the early morning are the toughest to strategize liquid intake. To drink or not to drink…that is the question. My recommendation…always pee before leaving the house. Your bladder will be full again, probably 3 times over before the procedure. Later in the day seems easier to plan out…maybe the kidneys don’t feel like working as hard as the day progresses.

Consider the car ride: Ok ladies, just by getting into a car and knowing you are going somewhere means that you will have to pee within 15 minutes of getting in the car. This is physiologically how the female bladder functions. I have a 45 minute to 1 hour drive to the doctor so I also have to take that into account. So, those 16 ounces of water you were told to drink? Once again…I wouldn’t do it, unless you live next door to your doctor’s office.

Partial bladder relief before an ultrasound: Now this takes practice and the body does not want to do this. Of all the times I’ve had these procedures, there has been only one time…let me repeat…one time, that I have found the perfect balance of liquid intake and timing of the appointment. All the other times, I’ve been completely desperate to go to the bathroom as soon as I walk through the door. So, then the question: How much to pee? This is pure guess-work and requires Jedi mind tricks on yourself to stop in time. But don’t fret, if you take it too far. You can always drink more water.

Photo by CJE

Finding my sunshine: Chance #4/31

coastal sunshineI haven’t been able to bring myself to write for the past couple of weeks. The outcome of this past embryo transfer left me confused and once again extremely disappointed and sad. My first HCG test result was “5”. In order to be considered a positive pregnancy result, it needed to be over 50. I have not experienced anything other than a clear “not pregnant” result or a number high enough to jump for joy. It is hard enough seeing that I’m not pregnant but in this case, I couldn’t just get the negative result, be sad, deal with it and move on. This was a dark cloud that stuck around for a week. I had to retest two more times to see if the number changed. In the mean time, I worried about possible ectopic pregnancy or who knows what else this number could mean. The first retest stayed the same (even more confused) and the next one finally returned back to a normal “not pregnant” result.   My doctor said that most likely it was a chemical pregnancy where it is possible that the embryo attached and started to develop for 2-3 days, then stopped. I quickly moved into another cycle as soon as the final test result was confirmed as I luckily started a normal period right away. In a matter of 48 hours, medications were ordered, the next cycle was scheduled, I had a baseline ultrasound and bloodwork and my first injection was Friday night. I realized that I’ve been pushing myself to move on to new embryo transfer cycles as quickly as my doctor will allow as I’ve had the looming one year contract hanging over my head. As part of our egg donor process we paid for what is called a “refund plan” which allows us to have as many embryo transfer cycles as needed for a full year until we can have a pregnancy without any additional cost. Due to the logistics in general, plus a pregnancy that lasted about 9 weeks and recovery time from surgery, we have only been able to fit in 3 transfers so far. I have been so worried about the contract ending, meaning we would have to start paying again that it was causing me a considerable amount of extra stress. I talked to my doctor about this and found out there is a process to extend the time on our contract. And suddenly a huge weight was lifted off of me. I feel much better going into this cycle and I decided that if this time does not work, I’ll take a few months off. This will give me time to re-focus on my well-being and find my internal sunshine as it has been covered by many clouds of disappointment and heartbreak for such a long time. But I’ll keep my fingers crossed that this time is the one.

Photo by CJE

Fitness and Infertility

trail walkStaying mentally and physically healthy through infertility, IVF, embryo transfers, short periods of pregnancy and miscarriages has been incredibly challenging and often feels impossible. Since my journey through this process has spanned over the past couple of years, my fight to stay physically strong coupled with a desire to not give up on happiness and mental stability has often left me exhausted, drained and empty. And I’m just talking about ME. I’m not even getting into the impact this has on my marriage. This has left me struggling with what feels like a never-ending and futile attempt to lose weight (or to at least stabilize my weight) combined with cycles of deep sadness and sometimes depression through the disappointments and losses I have experienced on this journey. It is a constant start and stop process with exercise whether I’m in between cycles (amp up the exercise routine) or low impact walking post embryo transfer. As soon as I start to feel progress with physical fitness or any hope of losing a couple of pounds, here I am again making adjustments to put the possibility of pregnancy as the top priority following an embryo transfer. With the two pregnancy losses we have experienced, the only other possible thing my doctor recommended to increase my chances of future success is weight loss. My doctor recommended a certain BMI to enable optimal pregnancy health. I did the calculations. To reach this BMI, I would need to lose 35 pounds. That would take me months to achieve with 100% focus on nothing but exercise and nutrition. (and my body is STUBBORN!!) But sadly, I’m time-bound by the financial piece of this process. We are invested in a “refund plan” that allows us to have as many embryo transfers as needed to become pregnant within one year of starting this contract using embryos from our egg donor. (we have about 6 months left) This does not allow me the extra time off to reach this health/fitness and weight loss goal. By the time I have my next embryo transfer I will have had a little over 2 months to recover from the D&C procedure which was then followed by depression, a terrible flu and then a bad cold just two weeks later. This made it nearly impossible to try to lose weight in this period of time. As soon as I recovered, I started walking and swimming again and went back to the gym with my personal trainer. But do you know how hard it is to lose weight with the hormone fluctuations of pregnancy, followed by pregnancy loss, then throw in some depression, the holidays and some illnesses? It feels completely hopeless. My body fluctuated up and down in a 10 pound range following the pregnancy loss for at least a month. I’ve done a cleanse, given up sugar and alcohol and I exercise regularly and there is no weight loss happening here.

My health and exercise has always been a top priority for me. I’ve always been active and involved in sports or fitness activities, however I have struggled with my weight since I was a child. I have tried so very hard to stay in shape through this process of trying to make a baby. Prior to my first round of IVF, I spent one year training at a CrossFit gym trying to get as strong as possible before pregnancy. I’ve never given up on exercising and I work hard to eat as healthy as I can. But it is a daily struggle and very frustrating when doing my best may not be good enough. I definitely want to avoid blaming myself for a failed pregnancy because I wasn’t “fit” enough or because my BMI was too high. So, for now I just have to settle for what is realistic for me. The best I can do involves getting outdoors and enjoying walks with my dog and swimming and weight training (at least until Sunday). Then the exercise plan shifts again… I hope this time I will have a new 9 month fitness plan.

FullSizeRender (1)

Photos by CJE

Oops

Bill L imageSix cycles and too many injections to count. Calendars to follow and tracking injections on the right day at the right time on and off for the past two years. And we’ve done it perfectly every time. Until now. Last night was my first screw up. For this embryo transfer cycle (controlled cycle) I have to have an intramuscular injection of Delestrogen (which by the way is not an easy drug to get your hands on) on Tuesdays and Saturdays. I was supposed to start the Progesterone injections tonight. But, my brain somehow mushed the Tuesday and Wednesday calendar notes together and I did both last night. By the way, the calendar is color coded so the two drugs are highlighted in different colors. And, I wrote in large letters on the Wednesday date (START HERE), so I wouldn’t screw up the Progesterone start. My clinic had deliberately scheduled me to start Progesterone on Wednesday to enable a Monday transfer with MY doctor so that it would align with his schedule. After panicking last night and waiting for a call back from the nurse all morning, I found out that I did indeed mess up the transfer date since Progesterone is a trigger. It’s now on Sunday. Which should be no big deal (yay, one day earlier), but I know they do their scheduling to avoid transfers on the weekends. So, now I’ve made their weekend schedule more challenging for the lab and the doctors. And I don’t know which doctor will do the transfer. I was really relieved that I knew I would have MY doctor on Monday. Ugh. I’m trying to find a way to shake off my mistake Taylor Swift style, so I called up a good friend who has been through this same process. And she made me laugh. She re-enacted what the nurse was saying on the line while I was on hold…”dumbass on line 1, dumbass on line 1”. And in my head, I’m hearing that horrible boss from Office Space, saying to the doctors…”Yeah, I’m gonna need you to come in on Sunday. We’ve got a special embryo that needs to be transferred, ‘cause someone didn’t read her calendar.”

P.S.  While I was hard on myself, the nurse that I talked to was very helpful, understanding and sweet.  She made me feel better and they know that sometimes these things will happen.

Ummmm….No.

NoWhen I’m going through an embryo transfer cycle, I feel like I turn into the Queen of No…might as well call me Grumpy Cat. I feel like I have to defend my energy level, attitude and well-being, which means I have to say no to stuff. I have to stay focused on getting enough rest, exercising and eating right. And then I have to say no some more. And this applies to everyone (well, except the dog). But everyone else…husband, family, friends, work. My husband gets the worst of it.

Husband: We should adopt another dog! Let’s go look at rescue dogs next weekend!

Me: No.

Work: Do you think you can complete this project or take on this new assignment or travel to…

Me: No.

Dog: I love you! I love you! Play with me! Feed me! Cuddle with me!

Me: Well, ok…how can I say no to you.

Friends: We should go out to…

Me: No.

Husband: When do you think we can take a trip to…

Me: No.

Husband: Hey, let’s go…

Me: No.

Husband: Do you think you could…

Me: No.

Husband: Will you…

Me: No.

Chance #3/31: Day 2 (1/16/15) Stepping Forward

footprint imageI was feeling stable and strong showing up to my Dr. appointment on Friday for the baseline ultrasound to start our next embryo transfer cycle. I was looking forward to seeing my doctor and the familiar faces around the clinic. I was happy to get this baby-making project started again. I thought I had sufficiently put my recent pregnancy loss behind me (at least for the sake of getting through this appointment) and was focused on the forward march ahead. But then I saw a glimpse of the nurse down the hall who was with us in the room the day we saw our twins at the end of their short little life…and it all came rushing back. And then I was escorted to the exam room, where the site of the ultrasound television screen nearly brought me to tears. The last image I saw there was of complete stillness and shook me to the core and left me devastated. But I put a smile on my face and held it together as I shook my Dr’s hand and responded with “yes” and a smile to his question, “have you had enough time to refill your emotional tank?” The ultrasound showed that everything was fine. I had my blood drawn by a very sweet and friendly nurse where we had a chance to giggle. I asked her how best to break down scar tissue and referred to this as my “butt injury” as my glute muscles have still not recovered from all the intramuscular injections from the previous cycle and pregnancy. I had my new injection schedule in hand, and I walked away from the building focused on the next step with some hope in my heart.

Here we go…

Chance #3/31: Day 1

beach sunsetAnd so it begins…After waiting and waiting following my D&C (almost 2 months ago), I finally started a new cycle.  Tomorrow I have a baseline appointment at our fertility clinic to start another frozen embryo transfer cycle.  Medications, needles, syringes, gauze pads, alcohol swabs, sharps container and a dash of hope are ready to go.

Photo by CJE

The DNA Decision

child book ED storyWhen we dream of having our own children, we wonder how our looks and personality will pass down to our baby. Will they have our nose, our eye color or hair color? Will they laugh like us, look like us, smile like us? Maybe she will be my strawberry-blond mini-me bringing on comments from friends saying, “she’s so cute, she looks just like you!” But how does this all change and how do we accept that this type of dream is gone, when the genetics are not ours? How do we decide to move forward with the journey to baby when we can’t have “our” baby? Surprisingly, the decision turned out to be quite simple. Not that there weren’t fears that came along with it, but as options dwindle, the path becomes clear and now here we are with our donor embryos. When successful IVF with my own eggs became such a remote possibility, our next logical step seemed to be adoption. But then we found out about egg donation. Knowing my first choice is to carry the pregnancy on my own and be in control of the health of the baby from day one, this became our next best option. The process with our agency was so respectful and comforting that it became such an exciting new path for us. We chose a donor that resembled me as closely as possible to my eye, hair and skin color. We were able to review medical history and a thorough profile including photos from various years of her life. And then we had the option to meet her. While all personal information including names are kept confidential, we were able to sit with her for an hour with our conversation guided by a psychologist. I left the meeting feeling so thrilled to now have insight into her personality, her childhood, her family, her hobbies, music interests, travel desires and mannerisms. I left there hoping I would be able to share this with my child someday.

Here are a few things that I wrote about her shortly after meeting her:

…She has a cute smile. I hope we will get to see that smile again. She’s confident, witty, smart, a hard worker and likes reggae, rap, hip-hop and Jimmy Buffet. She has green eyes that sparkle with a daring and adventurous spirit. Blond hair that was dyed a bright orange-red with a short, spunky haircut. When we walked in the office to meet her I went to shake her hand and was surprised and happy to be met by a hug.

…She warned us that she is adventurous and daring, apologizing ahead of time that we could have a child climbing the walls.

After going through two partial pregnancies and experiencing the love for the life growing within me; there was no longer a fear or thought that “this baby isn’t mine.” They all felt like mine from the moment I heard a heart beat. The genetics did not mean a thing when I saw them on the ultrasound. All I saw were my babies and all I felt was love. And isn’t it exciting to think of creating a child where there are no preconceived ideas of what they should be like because you expect them to be like you? How wonderful to let go of that and just let them grow and blossom into who they are meant to be! So, if our miracle comes and someone says, “she’s so cute, she looks just like you!” I will smile and know that it’s because our love and our connected souls are shining through her eyes (or his, I’m not picky). We will belong to each other.